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VIVENDO COM CÂNCER TERMINAL: ISABEL VELOSO (+ LUCAS, DRA. MELINA) - Inteligência Ltda. Podcast #1154

Inteligência Ltda・85 minutes read

A cancer patient recounts their journey of battling Hodgkin's lymphoma, undergoing various treatments, and transitioning to palliative care while reflecting on the impact of their illness on their life and relationships. Despite facing challenges and uncertainties, the patient focuses on gratitude, creating memories with loved ones, and finding joy and meaning in life's small moments.

Insights

Len corrects the host's mispronunciation of his name, emphasizing it is not "Lenis."
Isabel shares her journey of battling cancer, discussing her struggles with anxiety and personal challenges.
Despite facing a terminal illness, the speaker emphasizes the importance of gratitude, cherishing moments with loved ones, and finding happiness amidst difficult circumstances.

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Recent questions

What is Hodgkin's lymphoma?
Cancer affecting the lymphatic system.
What is palliative care?
Holistic care for quality of life.
How does immunotherapy work?
Boosts body's immune response against cancer.
What are the side effects of chemotherapy?
Nausea, hair loss, fatigue, and more.
How does hair loss occur during cancer treatment?
Targeting sick cells affects hair growth.

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Summary

00:00

"Guests share stories on 'Limited Intelligence'"

The program "Limited Intelligence" features a host named Rogério Vilera who converses with a guest named Len.
Len corrects the host's mispronunciation of his name, emphasizing it is not "Lenis."
The host and Len engage in banter about their names and the participation of viewers in the live show.
Gifts are exchanged, including a book titled "The Fault of Our Stars" and a movie that resonates with the couple's story.
Isabel, a guest on the show, shares her journey of battling cancer and her upcoming wedding plans.
Isabel's fiancé, Lucas, introduces himself and discusses their relationship and struggles.
A doctor joins the conversation, explaining Isabel's diagnosis of Hodgkin's lymphoma and its impact on her health.
Isabel recounts her childhood, marked by frequent moves, family challenges, and the development of anxiety.
Isabel reflects on her struggles with anxiety, sleep issues, and difficulty making friends during her youth.
The conversation delves into Isabel's personal challenges and the impact of her illness on her life and relationships.

17:39

"Love, Faith, and Overcoming Cancer Together"

The speaker has three sisters, aged 34, 27, and one who is turning 29 soon.
Lucas, the speaker's current partner, met her at the gym in 2023.
Initially, Lucas helped the speaker with an exercise at the gym, sparking their interest in each other.
They started training together at the gym and eventually began dating after a first kiss.
The speaker had reservations about dating due to past relationships but eventually accepted Lucas's invitation for dinner.
After the first dinner, they started dating within 15 days and are still together.
The speaker and Lucas believe in destiny and the power of prayer in shaping their lives.
The speaker faced a health crisis where she was misdiagnosed multiple times before discovering she had cancer.
The cancer had grown around her heart, compressing her organs and causing her to lose part of her lung.
Despite the challenges, the speaker believes in the power of faith and prayer in overcoming difficulties and finding a positive outcome.

30:54

"Medical Journey: Hodgkin's Lymphoma Treatment Success"

Hospital in Cascavel didn't provide a health plan due to a preexisting condition.
Underwent a thorax centesis for lung drainage, removing 3.7 liters of water.
Required surgery to insert a drain between the ribs, draining a total of 9.5 liters of water.
Biopsy revealed unclassifiable classical Hodgkin's lymphoma.
Initial chemotherapy reduced tumor size but increased activity, necessitating further treatment.
Experienced a near-death episode during a three-day chemotherapy session.
Immunotherapy showed progress, leading to a bone marrow transplant.
Bone marrow transplant involved collecting marrow through a peripheral vein and transfusing it back.
Post-transplant, endured mucositis and required a feeding bag for three days.
Received 16 additional immunotherapy applications post-transplant to prevent cancer recurrence.

45:46

"Gratitude Amid Cancer: A Journey"

The individual experienced a growth issue at 15 years old, with a 17 cm by 17 cm by 17 cm mass affecting their spine.
Following immunotherapy treatment, a lump appeared on their neck within a month, leading to a biopsy confirming the return of cancer symptoms.
Despite exhaustion from treatment, the individual chose gratitude and began writing a book titled "Despite the Pain, Gratitude."
The individual faced severe reactions to immunotherapy, including neuropathy and loss of leg movement, leading to excruciating pain and hospitalization.
A nurse wrongly attributed the individual's pain to a psychological issue, prompting a decision to discontinue further treatment due to severe reactions.
Transitioning to palliative care, the individual received explanations on the term's meaning and the focus on holistic patient care beyond cancer treatment.
Palliative care aimed to improve the individual's quality of life, manage symptoms, and address physical, emotional, and spiritual pain.
Doctors refrained from providing a specific timeframe for the individual's prognosis due to uncertainties, with estimates ranging from two to four months.
Despite the tumor shrinking significantly after treatment, the individual faced the challenge of accepting a potentially limited timeframe, impacting future plans.
The individual expressed a preference for believing in a longer timeframe, highlighting the emotional turmoil of facing a potentially short life expectancy.

01:00:28

Navigating Terminal Illness with Grace and Gratitude

The speaker discusses how some people question her terminal illness, emphasizing that her type of illness is stable, with size affecting aggressiveness.
Despite having metastasis, the size of the tumor impacts the compression on her heart, with a small tumor being less impactful.
The speaker expresses frustration at people doubting her illness, leading her to post a report to address the skepticism.
She mentions being in palliative care for months, highlighting the emotional and physical exhaustion of dealing with a terminal illness.
The speaker plans to enjoy her remaining time, focusing on creating memories and experiences with loved ones.
She reflects on the importance of healing others emotionally and mentally, rather than just seeking a cure for herself.
The speaker acknowledges the inevitability of her passing and aims to make her remaining time meaningful and impactful for those around her.
Despite the pain and challenges, she expresses gratitude for the lessons and perspective her illness has brought her.
The speaker discusses her fear of leaving loved ones behind but finds solace in the idea of not being alone when she passes.
She reflects on the impact her illness has had on her life, from missing out on typical experiences to finding gratitude in the present moment.

01:14:55

Cancer diagnosis leads to life-changing decisions.

The decision to share personal struggles on social media was influenced by the need for an outlet, particularly on TikTok, where the individual found solace in venting and even posting light-hearted content about their situation.
The individual's relationship with their partner, Lucas, evolved quickly from dating to planning marriage, with the intention always being to start a family.
Financial constraints due to a cancer diagnosis led to the postponement of wedding plans until a crowdfunding campaign successfully raised the exact amount needed for the ceremony.
The individual, initially not fond of parties, found immense joy and meaning in the wedding celebration, which was made possible by the crowdfunding initiative.
The cancer diagnosis prompted a significant shift in the individual's perspective on life, leading to a newfound appreciation for small moments and connections with loved ones.
The individual's family played a crucial role in providing support and care during the challenging times of the cancer diagnosis and treatment.
Despite exploring experimental treatments like Cart cell therapy and nivolumab, the individual decided to discontinue treatment due to the severe side effects and a desire for a better quality of life.
The individual's decision to stop chemotherapy resulted in regrowth of hair, explaining why they no longer appear bald in recent photos.
The doctor emphasized the uncertainty and risks associated with experimental treatments, leaving the final decision to the patient based on their tolerance for potential side effects.
The individual's choice to prioritize quality of life over continued treatment was driven by a desire to live fully and without the burden of severe treatment side effects.

01:29:11

Navigating Hair Loss and Treatment Challenges

Hair loss can occur due to treatments like chemotherapy and immunotherapy, which target sick cells without affecting hair growth cells.
Immunotherapy can lead to hair loss, as experienced by the speaker who noticed thinning and shedding of hair after treatment.
When facing a recent diagnosis or similar situation, it is crucial not to compare one's case with others, as each individual's response to treatment is unique.
The speaker emphasizes the importance of not comparing oneself to others in terms of treatment and self-esteem, highlighting the uniqueness of each person's journey.
Palliative care can stabilize the disease and provide a better quality of life, with the speaker sharing personal experiences of improved mental well-being during this phase.
The speaker uses a patch on the arm that is 30 times stronger than morphine to control pain, along with cannabidiol to manage anxiety and pain effectively.
It is essential to find strength in something, whether it be a person, a hobby like cooking, or spiritual beliefs, to navigate through challenging times.
The speaker encourages living life to the fullest, enjoying moments with loved ones, and finding happiness despite difficult circumstances.
In a poignant moment, the speaker expresses a desire for loved ones to live and love on their behalf after they are gone, emphasizing the importance of cherishing life.

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