A rare genetic disorder causing premature aging.

How many children have progeria?

Only 144 kids worldwide have progeria.

How does Michiel find strength?

Michiel finds strength in his family and friends.

Michiel enjoys sports challenges like snowboarding and go-karting.

Michiel aims to raise awareness and inspire others.

Michiel Vandeweert, diagnosed with progeria at age 5, remains small and hairless due to a mutation in the LMNA gene, highlighting the rarity and physical impact of this condition.
Despite unique challenges and bullying, Michiel maintains a positive outlook on life, finding strength and encouragement from family and friends, showcasing resilience and determination in the face of adversity.

What is progeria?
A rare genetic disorder causing premature aging.
How many children have progeria?
Only 144 kids worldwide have progeria.
How does Michiel find strength?
Michiel finds strength in his family and friends.
What activities does Michiel enjoy?
Michiel enjoys sports challenges like snowboarding and go-karting.
What is Michiel's goal in sharing his story?
Michiel aims to raise awareness and inspire others.

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Michiel Vandeweert, diagnosed with progeria at age 5 due to a mutation in the LMNA gene, remains small and hairless.
Only 144 kids worldwide have progeria, with an average age of 12, presenting unique challenges in life.
Despite facing difficulties and bullying in school, Michiel maintains a positive outlook on life, supported by his family and friends.
Michiel finds strength in his family and friends who encourage him to experience life fully, including sports challenges like snowboarding and go-karting.
By sharing his story and experiences with progeria, Michiel aims to raise awareness and inspire others to make the most of life despite challenges.